图书简介

About the ANN’s Neurology NowTM Books Series; Lisa M. Shulman, MD; Dedication; Preface; Acknowledgements; Chapter 1- Introduction; What are the Basic Features of ALS?; How it Starts - Patient Stories; How to Use this Book; Chapter 2 -ALS Origins; Why the Name ALS?; Is ALS Different from Motor Neuron Disease?; Is ALS a New or Old Disease?; How Common Is ALS?; Who Was Lou Gehrig?; Who Else had ALS?; Chapter 3 - The Diagnosis of ALS Diagnosis; What Features Make the Diagnosis?; What Does the Neurologist Look For?; What Are the Symptoms and Signs of ALS?; Bulbar Difficulties; Upper Extremity Difficulties; Lower Extremity Difficulties; Why So Many Tests?; What Are the El Escorial Criteria?; What Are Rule Out Tests?; Why Does it Take So Much Time to Make the Diagnosis?; Do I Really Have ALS; What Diseases Mimic ALS?; Multifocal Motor Neuropathy with Conduction Block (MMN); Inclusion Body Myositis (IBM); Kennedy Disease; Cervical Spondylitic Myelopathy; Lumbosacral Spondylitic Radiculopathy; Lyme Disease; Carpal Tunnel Syndrome; Ulnar Neuropathy at the Elbow; Should I Get a Second Opinion?; How Was the Diagnosis Given and Received?; Chapter 4 - Causes of ALS; What Causes ALS?; Why Do Neurons Die in ALS?; Glutamate Excitotoxicity; Oxidative Stress; Mitochondrial Dysfunction; Protein Aggregation; Immune Dysfunction; Gene Mutations; Challenging Facts About ALS; Why Do I Have ALS?; Environmental factors; Clusters; Military Service; What Is Familial ALS?; How Is ALS Passed On?; Autosomal Dominant Inheritance; Autosomal recessive Inheritance; X-linked Inheritance; How Many Genes are Associated with Familial ALS?; Are There Genes Associated with Frontotemporal Dementia?; Are Genetic Causes of ALS and Frontotemporal Lobe Dementia Related?; How Do I Know if I Have Familial ALS?; Should I Have Genetic Testing for ALS?; Should Family Members of Individuals with Familial ALS Have Genetic Testing?; Chapter 5 - Motor Progression of ALS; How Does ALS Progress?; How Is Progression Measured?; Muscle Strength; Functional Rating Scale; How Fast Am I Progressing?; Does ALS Ever Get Better?; Are There Staging Scales for ALS?; Chapter 6 -Non-Motor Features of ALS; What Is Frontotemporal Lobe Dementia?; What Are the Features of Frontotemporal Lobe Dementia?; How Is Frontotemporal Lobe Dementia Diagnosed?; Why Is It Important to Diagnose Frontotemporal Lobe Dementia?; How Are Symptoms of Frontotemporal Lobe Dementia Treated?; What Is Pseudobulbar Affect (PBA)?; What Are the Features of Pseudobulbar Affect?; How Is Pseudobulbar Affect Diagnosed?; Why Is it Important to Diagnose Pseudobulbar Affect?; How Is Pseudobulbar Affect Treated?; Can ALS Cause Changes in Bowel and Bladder Function?; Why Do I Feel so Fatigued?; ALS Can be Depressing; How Do I Know if I Am Depressed?; Why Have I Noticed Changes to My Skin?; Why Do I Have Scaly Skin?; Why Do I Sweat so Much?; Why Do My Eyes Sting?; Why Do I Bite My Cheek?; Why Are My Hands or Feet Red, Swollen or Cold?; Do I Have to Worry About a Deep Venous Thrombosis (Blood Clot)?; Do I Have to Worry About Skin Pressure Sores?; Chapter 7 - Treatment of ALS; Do I Need a Primary Care Physician?; Should I Continue with My Current Medications?; Where Can I Get the Most Comprehensive Care?; What Happens in a Multidisciplinary ALS Clinic?; Neurologist; Nurse; Speech-language Pathologist; Occupational Therapist; Physical Therapist; Respiratory Therapist; Dietitian; Social Worker; Genetics Counselor; Palliative Care and Hospice; Pulmonologist; Gastroenterologist; Psychiatrist; Psychologist; Orthotist; How Often Should I Be Seen in Clinic?; Should I Attend a Support Group?; What Is Available on the Internet?; What Should I Take for My ALS?; What About Rilutek or Riluzole?; What Else Is Available?; What About Stem Cells for ALS?; What Can Stem Cells Do?; How Are Stem Cells Delivered in ALS?; Where Can I Get Stem Cells?; What About Dietary Supplements and Alternative Therapies?; Will Protein Supplements Build Muscle?; Can Creatine Give Me More Strength?; Can Chelation Therapy Get Rid of Toxins?; Should I Replace My Amalgam (Silver) Dental Fillings?; What About Massage and Acupuncture?; Can Exercise Improve Strength?; If I Don’t Exercise Will I Lose Strength Faster?; Can Exercise Be Harmful?; Chapter 8 - Living with ALS; What Will Be My Quality of Life?; What Can I Still Do?; Can I Travel?; Can I Still Have Intimacy?; Can I Have a Baby?; What Is My Legacy to My Family?; Chapter 9 - Nutrition in ALS; Why Is Nutrition Important in ALS?; Why Do I Lose Weight?; What Foods Are Harder or Easier to Swallow?; How Much Weight Loss Is Too Much?; How Do I Stop Weight Loss?; High Calorie Foods; Supplements; What Is Patient-Caregiver Stress over Food?; What if I Can’t Maintain My Weight Despite Supplements?; How Are Feeding Tubes Placed?; Percutaneous Endoscopic Gastrostomy (PEG); Radiologically Inserted Gastrostomy (RIG); Surgically Placed Gastrostomy; How Do I Use a Feeding Tube?; How Do I Take My Medications if I Have a Feeding Tube?; What Can I Expect From a Feeding Tube?; Can I Still Eat if I Have a Feeding Tube?; Chapter 10 -Breathing and ALS; How Does ALS Affect Breathing?; How Does the Diaphragm Work?; How Will I Know My Breathing Is Affected?; What Does High Carbon Dioxide Do?; How Is Breathing Measured in Clinic?; What Can I Do To Help My Breathing on My Own?; What Is Air or Breath Stacking?; Stopping Smoking; What Will Supplemental Oxygen Do?; What Breathing Numbers Concern Doctors?; Why Is My Cough Weak?; What Is a CoughAssist Device?; What Causes My Throat to Tighten and Make It Hard to Breathe?; What Happens When My Breathing Becomes Weaker?; What Is Non-invasive Ventilation?; What Can I Expect with Non-invasive Bi-level Ventilation?; What Is Diaphragm Pacing?; How Is Progressive Respiratory Failure Managed?; What Is Invasive Ventilation?; What Can I Expect with Invasive Ventilation?; How Do I Make the Choice For or Against Invasive Ventilation?; What Does Locked-in Mean?; What If I No Longer Want to Continue Invasive Ventilation?; Chapter 11 - Communication and ALS; How Does ALS Affect Speech?; How Can Speech Be Optimized?; What Are Low-Tech Speech Aids?; Handwriting; Alphabet Board; What Are Medium-Tech Aids?; Speech Amplification; Mobile Telephones; Digital Tablets; What Are High-tech Speech and Writing Aids?; Head and Eye Tracking Devices; What Is Voice Banking?; What Is Brain-Computer Interface Communication?; Chapter 12 - Mobility and ALS; How Can I Pursue Athletic Activities?; How Can I Manage Dressing?; Button Hooks; Velcro; Zippers; Loose-Fitting Clothes; Shoes; How Can I Get On and Off the Toilet?; How Can I Get In and Out of the Shower and Tub?; Showers; Bathtubs; How Do I Manage Personal Hygiene?; How Do I Manage Brushing My Teeth with Weak Hands?; How Can I Turn Over in Bed?; Blanket Tent; Satin Bed Clothes; Bed Handholds; How Can I Support My Head and Back?; Why Do I Feel Unsteady and Fall?; What Can Be Done to Aid Walking?; Ankle-foot Arthosis; Cane or Walking Stick; Walker; Lift Chairs; Medications for Spasticity; What If I Fall and Cannot Get Up - Medical Alert Signaling Systems?; What About Wheelchairs?; Manual Wheelchairs; Power Wheelchairs; How Do I Get a Power Wheelchair In/Out of the House and Car?; Does Insurance Pay for a Wheelchair?; How Do I Order a Wheelchair?; What About a Scooter?; Why Are Patients Frequently Reluctant to Use Mobility Aids?; How Can I Transfer Safely?; What Is a Lift?; Floor Lifts; Ceiling Lifts; What About Changes to the Home and Renovations?; Can I Still Drive?; Chapter 13 - Managing ALS Symptoms; How Can I Manage My Saliva?; How Can I Manage Thick Phlegm?; What Can I Do About Muscle Cramps?; How Can I Stop Muscle Twitches (Fasciculations)?; How Can I Reduce Leg Stiffness?; How Can I Manage Sudden Urges to Urinate?; How Do I Manage Constipation?; What Are Anticholinergic Side Effects of Medications?; How Can I Manage Pain?; How Can I Treat Depressed?; How Can I Treat Anxiety?; How Can I Get Better Sleep?; What If I Can’t Swallow Pills?; Chapter 14 - The Caregiver and ALS; Who Provides Care?; How Does Providing Care Change with ALS Progression?; What Is the Best Way to Offer Help?; How Do Patients and Caregiver Manage?; How Do Caregivers Manage Changes in Roles?; What Can Caregivers Do to Ease the Care Burden?; Does Providing Care Affect Caregiver’s Health?; What Do Caregivers Really Feel?; Is Depression Common Amongst Caregivers?; How Can a Caregiver Manage Stress?; What Are Respites?; What Is Bereavement While the Patient Is Alive?; Can a Caregiver Have Survivors’ Guilt?; How Should the Caregiver Prepare for Being Alone?; Chapter 15 - Events at the End of ALS; How Do People with ALS Die?; What if I Want to Continue Living?; What if I Can’t Make Up My Mind About Ventilation?; What if I Don’t Want to Continue Living?; Do ALS Patients Take Their Own Lives?; What Are Palliative Care and Hospice?; When Should Hospice Be Considered?; How Can Spirituality Help?; Chapter 16 - Planning Ahead; Who Should I Tell?; How and What Should I Tell My Family?; What Should I Tell My Children?; What Are Medical Directives?; Living Will; Power Of Attorney for Health Care; Do Not Resuscitate Order; What Do I Need to Know About Estate Planning?; Will; Trust Agreement; Power of Attorney; Lifetime Gift; What About Computer Passwords and Safety Deposit Boxes?; What About Health Insurance?; Medicare; Military Veteran Benefits; Should I Keep Working?; What Is Family and Medical Leave?; What Are Other Financial Considerations?; Chapter 17 - Research in ALS; What Is Going on in ALS Research?; How Are Drugs Discovered and Tested?; Where Can I Get More Information About Trials?; Should I Participate in a Trial?; What is Informed Consent?; Let Me Try It; What Do I Have to Lose?; Chapter 18 - Concluding Thoughts; Neurologist’s Perspective; Caregiver’s Perspective; Glossary; Index

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