图书简介
This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident.This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents? experiences of what they consider helpful or not so helpful are interwoven throughout the chapter.There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals.As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.
Foreword.- Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care.- Chapter 1. Introduction to Neonatal Palliative Care.- Chapter 2. Exploring the Concept on Neonatal Palliative Care.- Chapter 3. Support for Staff: Building Resilience in Nurses.- Chapter 4. The Importance of Effective Communication on the Neonatal Unit.- Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family.- Chapter 6. Ethical Concepts in Neonatal Palliative Care.- Chapter 7. Legal Issues in Neonatal Palliative Care.- Chapter 8. The Principles of Genetics within Neonatal Palliative Care.- Chapter 9. Antenatal.- Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background.- Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project.- Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse.- Chapter 13. Advance Care Planning.- Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care.- Chapter 15. Continuing Emotional and Practical Support for the Whole Family.- Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care.- Chapter 17. Collaboration between Neonatal Units and Children?s Hospices ? Exploring Opportunities for Potentially Improving Care and Offering Choices.- Chapter 18. Interdisciplinary Working in Neonatal Palliative Care.- Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice.- Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination.- Part II. Achieving Quality in Neonatal Palliative Care Internationally.- Chapter 21. Introduction.- Chapter 22. Australia.- Chapter 23. Kuwait.- Chapter 24. India.- Chapter 25. Malaysia.- Chapter 26. South Africa.- Chapter 27. Ireland.- Chapter 28. The Netherlands.- Chapter 29. Germany.- Chapter 30. Singapore.- Chapter 31. Ukraine.- Chapter 32. Argentina.- Chapter 33. Italy.- Chapter 34. Scotland.- Chapter 35. France.- Support Organisation.- Index.
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