图书简介
Dementia is increasingly being recognised as a public health priority and poses one of the largest challenges we face as a society. At the same time, there is a growing awareness that the quest for a cure for Alzheimer’s disease and other causes of dementia needs to be complemented by efforts to improve the lives of people with dementia. To gain a better understanding of dementia and of how to organize dementia care, there is a need to bring together insights from many different disciplines. Filling this knowledge gap, this book provides an integrated view on dementia resulting from extensive discussions between world experts from different fields, including medicine, social psychology, nursing, economics and literary studies. Working towards a development of integrative policies focused on social inclusion and quality of life, Dementia and Society reminds the reader that a better future for persons with dementia is a collective responsibility.
Introduction: Mathieu Vandenbulcke, Erik Schokkaert and Rose-Marie Dröes; 1. Different perspectives on dementia Lies Van Assche, Martin Rossor, Constantine Lyketsos, John Keady and Mathieu Vandenbulcke; 2. From history to intervention: a socio-cultural analysis of dementia stigma Perla Werner, Pieter Vermeulen, Baldwin Van Gorp and Peter Simonsen; 3. Personhood, identity, and autonomy Bart Pattyn, Peter Hacker, Ursula Basset, Mathieu Vandenbulcke and Rose-Marie Dröes; 4. Living meaningfully with dementia Laura Dewitte, Gørill Haugan, Mathieu Vandenbulcke and Jessie Dezutter; 5. Quality of life of persons with dementia: different disciplinary perspectives Rose-Marie Dröes, Teake Ettema, Martin Knapp and Erik Schokkaert; 6. Living with dementia: relationships, intimacy, sexuality, and care Frauke Claes, Nelle Frederix and Paul Enzlin; 7. Informal care for persons with dementia: characteristics and evidence-based support interventions Anja Declercq, Rose-Marie Dröes, Mary Mittelman and Chantal Van Audenhove; 8. Risk factors and non-pharmacological prevention of dementia Rudi D’Hooge, Ann Van der Jeugd, Sebastiaan Engelborghs, Frans Boch Waldorff and Mathieu Vandenbulcke; 9. An empowering dementia environment Jos Tournoy, John Keady, Mythily Subramaniam, Evelien Coppens, Aline Sevenants, Chantal Van Audenhove, Maarten Van Den Bossche, Iris Van Steenwinkel and Ann Heylighen; 10. The impact of the covid-19 pandemic on the well-being of people living with dementia Debby Gerritsen, Henriette van de Roest, Shirley Evans, Ruslan Leontjevas, Marleen Prins, Dawn Brooker and Rose-Marie Dröes; 11. Care planning and and the lived experience of dementia: establishing real will and preferences beyond mental capacity Tim Opgenhaffen, Johan Put, Jan De Lepeleire, John Keady and Aagje Swinnen; 12. Societal and ethical views on end-of-life decisions in dementia Chris Gastmans, Jenny van der Steen and Wilco Achterberg; 13. Driving and dementia Catarina Lundberg and Dorota Religa; 14. Social and private costs of dementia care Patrick Cloos, Martin Knapp, Jeroen Luyten, Erik Schokkaert and Cheng Shi.
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